Index 285 I Index A accessibility to hospice and palliative care barriers 19–21 beliefs 19 fears, taboos 19 lack of clear prognosis 19 lack of training 19 underserved populations 20 Activities of Daily Living (ADLs) prognosticating 58 activity level assess with Palliative Performance Scale (PPS) 62–64 assess with the Gold Standards Framework Palliative Indicator Guidance (GSF PIG) 52–54 activity level, changes in bowels 127–132 assess with Victoria Bowel Performance Scale 71–72 activity level, delirium brain 134 delirium versus dementia 136 activity level, pain assessing pain during an activity 76, 78 addiction opioids 109 adjuvants 183 advance care planning 206–208 conversation starters 50 CPR 236 definition 206 implantable cardioverter defibrillators (ICD) 237 strategies 207 substitute decision maker 206–207 transitions 191 agitation delirium 141 last days and hours 244 ALS dyspnea 144 Alzheimer’s disease case study: pain 185–187 Gary Quinton’s experience 9 slow decline 7 ambulation screening with Palliative Performance Scale (PPS) 63 ANA Code of Ethics Provision 2 35 Provision 4 35, 106, 154 Provision 6 12 Provision 7 15, 26 anemia and dyspnea 144–154 fatigue 155 anorexia and cachexia 119–126 assessment 121–122 Clinical Frailty Scale 121 ESAS 121 Symptom Assessment Tool adapted for anorexia and cachexia 121–122 definitions 119, 124 fatigue 155 information sharing 123 last days and hours 240 nonpharmacological comfort measures 125 pharmacological measures 125 primary anorexia cachexia syndrome (ACS) ACS versus starvation 121, 124 assessment 121 causes, pathophysiology 120, 124 secondary anorexia/cachexia 120 supporting 123 anticipatory grief 198 anxiety dyspnea 145 myths about depression 190 pain 183 psychosocial response to life-limiting illness 189–190 screening 60 appetite assess with Symptom Assessment Tool 121–122 decreased with anorexia, cachexia 119–125 screening with ESAS 60, 121 assessment CHPCA Process of Providing Care 17–19 preparing person and family, last days and hours 231–232 tools 59–78 assisted dying 210–217 definitions 210–211 eligibilty 211–212 medical assistance in dying (Canada) 210–216 nurse’s role 215 process 212 reasons to request 213–214 responding to requests 214–216 autonomy. See advance care planning B baby boomers numbers of dying 3 baggage 43–44 and reflective practice 43 barriers to accessing hospice and palliative care 19–21 to being supported 90