Why do patients often deviate from their advance directives?

10/10/2012

Today, I read of a study where 189 patients were followed over a two year period, and where the researchers found that nearly half of the patients were inconsistent with their wishes about treatment. “Why do patients often deviate from their advance directives? They do so because they cannot accurately imagine what they will want

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The power of information sharing to support informed decision making!

09/26/2012

The CHPCA Model to Guide Care outlines the “Process of Providing Care”.  Unlike the Nursing Process (assess, plan, implement and evaluate) that I learned as a young nursing student, the CHPCA model identifies ASSESSMENT INFORMATION SHARING DECISION MAKING then CARE PLANNING CARE IMPLEMENTATION and finally CONFIRMATION (evaluation) I am struck by the simplicity of this

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Loss Grief and Dying with Dementia.

09/21/2012

Alzheimer’s disease and related dementias are by their diagnosis terminal illnesses. Over the past few years dementia care and hospice palliative care have turned their lens to quality care for people with late stage dementia. Integrating a palliative approach in dementia care can make the world of difference to the experience of those living with

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Celebrations for Health Care Workers….

09/21/2012

They are known by many different names, Personal Support Workers, Health Care Workers, Community Health Workers, Home Support Workers, Resident Care Assistants, and Health Care Assistants. They provide personal care so people can stay at home when they are no longer independent.  They provide 70% of direct care in facilities.  They are skilled at personal

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Difference between hospice and palliative care – geographic comparison and suggestion that we benefit from a "GPS" to help us navigate!he terrain!

09/08/2012

Dr James Cooper wrote a comparison of Hospice and Palliative Care, providing some good examples of the emphasis in both hospice and palliative care to encourage the dying person to choose the treatment they want.  He closes his summary by comparing hospice and palliative care  to North America and Europe – “The basic primer is

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One strategy to decrease overtreatment…

08/29/2012

A hundred years ago we did not need to worry about this… but when dying in the 21st century, overtreatment is possible, can add to disease burden, can decrease quality of life, and is in fact a concern that we need to address! Article in NY Times by Tara Parker Pope, “Overtreatment is taking its

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Two websites that every patient and family should know about…

08/29/2012

Imagine… a personal, protected site that makes it easy to post a health update, send out an email blast to friends and family, and better yet,…  list anything that you need help with.  A website that will save you time and energy of making multiple requests and worrying about being a burden. Or Imagine… you

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