Once upon a time, competencies were developed for health care providers in palliative and end of life care. There were competencies written for nurses, health care workers (nursing assistants, personal support workers, hospice aides), physicians and social workers, and others. There were competencies developed in many lands, in Ireland and the United States, in Nova Scotia and Alberta, in Ottawa and Vancouver, to name just a few. After creation, competencies struggled to be heard and adopted and too often were not used to inform curriculum or education development.
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It takes a village to raise a child, (and my mother added, “It takes a community to care for the dying”).
I often think of this quote and celebrate the people who helped me to raise my kids, and those who contribute to the development of hospice and palliative care education resources.
This past week I received some beautiful, inspiring, testimonials about our new nurse’s text, Essentials in Hospice and Palliative Care: A Practical Resource for Every Nurse. I want to share those testimonials, but do NOT want to share the testimonials until I acknowledge the people who contributed to the development and inspired or influenced or assisted with the writing of the text.
We just attended the Hospice Palliative Care Ontario 2016 Conference in Toronto. Wonderful event with nearly 800 attendees.
Much talk about PAD (Physician Assisted Dying) or MAID (Medical Assistance In Dying). The following day there was an interesting opinion piece in the Globe and Mail by Dr Tom Koch, a gerontologist and ethicist, who provides chronic and palliative consultations. The title of the article, “The next court challenge, the right to better care“.
Koch asks the question, “If the Supreme Court decision enshrines choice as a principle of Canadian justice, then what choice are we to be offered? If it is between constant pain and an early death, most of us would prefer the latter. Expert palliative care can mitigate physical suffering in, according to experts, perhaps 95% of all cases. But at present, that level of pain control is unavailable to many Canadians. Without its surety, the choice is limited, if not empty, and justice therefore denied because a real full choices is withheld. Similarly, all agree that end stage home care and hospice care can make the last stage of an illness more than bearable. But many Canadians who would choose this, can not, it is not available. And without its insurance, the choices they are offered to care to the end are limited.”
Today Bill C-14 was presented to parliament.
Today the Canadian Government introduced legislation to make medical assistance in dying legal. The facts about the proposed legislation can be found here.
People have asked what I think about Medical Assistance in Dying. I have not presented my thoughts openly on this topic, for a number of reasons. Tonight, I will respond to those who have asked, and I will share a few very personal thoughts.
April 14th. My reflection on Medical Assistance in Dying
Advance Care Planning Day in Canada, and National Healthcare Decisions Day in the USA, is quickly approaching. On April 16, 2016, it’s time to speak up – and have discussions with friends and family members about your wishes for end-of-life.
Life and Death Matters created Care Planning Cookies, edible cookies with a message inside, each one intended to stimulate conversations about living well and dying well. One hospital in Ontario is ensuring that each patient receives a cookie on their meal tray, and that family and staff are given cookies with their food and beverages in the cafeteria, leading up to April 16th.
Written by Kath Murray and Misha Butot. This writing was inspired by Misha’s original research and was lovingly edited by Coby Tschanz, Allyson Wightman and Joanne Thomson
Misha Butot was a counselor with 14 years of professional experience when she became curious about how love was a factor or perhaps the essence of quality physical and emotional care. She explored the ways that self-reflective and social justice oriented care providers thought and practiced “love” in their work with those they served by speaking with both clients and colleagues. She traveled through western Canada interviewing a small but diverse group of care providers of different ages, genders, sites of practice, and cultural and spiritual backgrounds. In spite of this diversity, many of their perspectives on the key role of love in their work were remarkably similar.
Guest blog post by Katherine Arnup – life coach, speaker, and a retired Carleton University professor. Author of the award-winning book Education for Motherhood, a history of advice for mothers, she has pioneered studies on the diversity of family life. In her latest book, “I don’t have time for this!” A Compassionate Guide to Caring for Your Parents and Yourself, she tackles the last taboo—death itself.
Almost twenty years ago, my sister Carol died of cancer.
She was a gifted Special Education teacher, director of countless school musicals, and my big sister. In January 1997, 19 years after her first encounter with melanoma, her cancer returned with an unstoppable force. As part of a team of friends and family, I cared for her during her final six months: the saddest, most terrifying and most transformative experience of my life.
Over the past few years I have cited the iPANEL research (Initiative for a Palliative Approach in Nursing: Evidence and Leadership) as one of the most important research projects in hospice and palliative care today.
Today the iPANEL team announced the publication of their latest article – Conceptual foundations of a palliative approach: a knowledge synthesis. The article can be found here.
Please distribute this article widely! This is an open access journal, so SEND people to the LINK instead of sending the PDF. The number of hits impacts the ranking of the article on the journal’s website!
Yvonne Heath is a wife, mother to three amazing children and a nurse since 1988. She has worked in ten different hospitals in Ontario, New York, Louisiana and Texas, and has nursed in the emergency room, long term care, medical and surgical units, intensive care in chemotherapy and hospice. Yvonne has witnessed a great deal of suffering, pain and death phobia, and felt it in her own life. She is the author of Love Your Life to Death.
To those who want to live well…and die well.
What if we planned our lives well instead of just going through the motions? What if we planned our end of life—long before a diagnosis, long before we were dying? What if we learned about grief before the grief so that we could be better prepared for it? Imagine…